Gaven, 5, with oromandibular limb hypogenesis, and his family enjoyed a dream vacation to visit the Orlando attractions.
Alvina Experiences the Magic of Disney and Universal
Lovely Alvina, diagnosed with chromosome 4q24 duplication, also known as Kabuki syndrome, experienced a magical adventure of going to Disney World and Universal Studios with her family. Alvina’s dreams became a reality filled with joy and laughter creating unforgettable memories for her and her family that will be treasured forever.
Thank you from Alvina’s Family
“I am writing to express our heartfelt gratitude for the incredible opportunity you provided to Alvina. Thanks to the donors and your generosity, her dream of visiting Disney World and Universal Studios became a reality. Alvina, along with her family, had an unforgettable experience filled with joy and laughter during this holiday season. Your support has made a lasting impact, creating cherished memories that will be treasured forever. Thank you for bringing sunshine into Alvina’s life and making her dreams come true.” – Alvina’s Mom and Dad
Alvina’s Diagnosis
Alvina has been diagnosed with chromosome 4q24 duplication, or Kabuki syndrome, which is a rare, multi-system disorder characterized by multiple abnormalities, including distinctive facial features, growth delays, varying degrees of intellectual disability, skeletal abnormalities, and short stature.
Sponsor
We are very grateful to a generous donor who helped make Alvina’s dream come true!
