Olivia, with aniridia, a rare eye disorder, travels to Disney World!
Ember Swims with Dolphins
Ember, with Morquio syndrome, loves dolphins and has always wanted to meet one up close. Thanks to the support of the All-Volunteer New Castle County Delaware Chapter, Ember met and swam with dolphins during her dream trip to Discovery Cove! Ember and her family also enjoyed a day at LEGOLAND Florida and relaxed in between at the Sunshine Foundation Dream Village.
Family Thank You
“We had an amazing time. Ember said, ‘This was the best trip ever!’ Her favorite part was swimming with the dolphins. We want to thank everyone again for making this an amazing experience.” – Ember’s mother, Carrie.
Ember’s Diagnosis
Ember has been diagnosed with Morquio syndrome (Mucopolysaccharidosis type IVA). Morquio syndrome, (Mucopolysaccharidosis type IVA) is a metabolic condition primarily affecting the skeleton. Symptoms may include skeletal abnormalities such as short stature, knock knees, and malformations of the spine, hips, and wrists.
Sponsors
Ember’s wish was answered by the All-Volunteer New Castle County Delaware Chapter through their annual Sunshine Scramble Golf Tournament. Thank you to all the volunteers, sponsors, and participants who made Ember’s dream come true!
